How are you?

Yesterday I was sitting at my computer knocking out a few administrative things I had been putting off all week. I was in the middle of writing up the record of my supervisory meeting when my phone went off. Instinctively I looked at the clock and saw it was dead on noon. Automatically I picked up my phone, unlocked it, and opened up my mood journal app. 

Last month I was finally evaluated at the hospital by a psychiatrist. I won't go into the details of the appointment, it was very much like any other kind of psychiatric evaluation. I was given some homework to keep a mood journal. I was to note down how I felt when I woke up and then to note when my mood changed and what was happening at the time to change it. This was a daunting prospect. I had been keeping a mood journal but I only noted my overall mood for the day. How was I going to remember to capture my mood when it changed? How would I know that it changed and why? I found a mood journal app for my phone and programmed it to remind me to capture my mood at least three times a day. Truth be told, I haven't been as consistent as I should have been but it was better than nothing.

I stared at the colourful capture screen. The feelings I could choose from ranged from "couldn't be worse" to "insanely great" with varying degrees in between. My thumb went to choose "okay" when I stopped.

Wait. Do I feel okay? What does okay actually feel like?

It occurred to me then that I had no idea how I was feeling. What's more, I realised I hadn't really thought about how I was feeling any of the times I had captured my mood data over the past month. I took a breath and really tried to focus. 

What am I feeling?

Nothing. I had no idea how I felt. 

I learned at an early age that when someone asks you how you are that they really don't want to hear the answer. It's just one of those social rituals we go through before we get to the "real" conversation. Consequently, we give very superficial responses:

How are you?

a. Okay.

b. Fine.

c. Could be better, but you know.

d. Good.

It's all rather meaningless. 

I began to realise as I stared at that screen that other than very strong emotions like anger, depression, or insane excitement, I really never knew how I was feeling. Most of the time I'm like an empty shell. I can act happy or engaged or interested but many times I'm just playing a part. I don't feel the accompanying emotion. I've learned to mimic but not the substance. I'm disconnected and because of this, it's very hard for me to have meaningful interactions. 

Now this isn't always the case. There are times when I'm overwhelmed with emotion (positive and negative) but I'm not sure I could actually name those emotions or describe them. It also depends on where I am in my mood cycle. I really feel like I'm at the numbest stage currently which is the time I feel least connected to how I'm feeling. And unfortunately, I'm way better at feeling and naming negative emotions than positive ones. In fact, since I began keeping the mood journal, I have never gone above "good" because I honestly don't know what that feels like beyond the two times I've felt manic (and even then, I'm not sure that was a good feeling; it was more disturbing).

I'm not sure what all of this means, and of course I have no idea how I feel about it. I think it's just something I will have to mention to the doctor when I turn in the data. Probably right after she asks me, "so how are you?"

Prisoner of Fatigue

It hit me last Thursday. I went to my 9:30 am CrossFit class like I normally did. My coach asked me how I was doing and I mentioned that I was tired. At that point it felt like the normal sort of tired. The kind you get after a sleepless night. I went through the WOD and was really slow. I'm normally not fast but that day I was super slow. I felt weak. I chalked it up to just an off day and walked home feeling totally drained. 

That Thursday was a marathon day. I got back home and showered and got ready for my salon appointment. I found myself sitting at my desk at one point just staring off into that middle distance of nothingness. I had been sitting there, doing that, not thinking or feeling anything for about twenty minutes. I shrugged it off, even though that is very unusual for me when I'm not depressed (and I wasn't). 

I went to the salon and nearly fell asleep while my stylist was washing my hair. I normally relish that time because she gives amazing scalp massages. Half way through my haircut I thought I was going to have to leave. The act of just sitting there began to feel like way too much for me to handle. It was as if in one moment someone had pulled the plug and any bit of energy I had was gone. I struggled through the rest of the appointment (seriously, how do you struggle just to sit still!?) and as I left I knew I couldn't make the walk home. Even though it was ten minutes, I physically couldn't do it.

There is a lovely coffee shop just around the corner from the salon. I went in and ordered a pot of tea and a sandwich. I thought that eating would possibly help and if that didn't the caffeine surely would. As I sat there I pulled out my Passion Planner and began to look at the rest of my day and week. I still had to go to special collections at the library to have a look at a collection for a project I agreed to help with. I had no idea how I would summon up enough spoons to walk there, look at the collection, and walk home. 

One of the girls at the table next to me excused herself and asked if I was using a Passion Planner. She was really lovely and enthusiastic and we began talking about how great they are and how she had just graduated from DeMontfort and how she wasn't sure if she wanted to go right into the workforce or if she wanted to try to make a living off of some project ideas she had. It was a really lovely conversation. The kind of lovely conversation I seem to have periodically with strangers. It made me happy and for some reason I found just enough energy to make it to the library for my meeting.

The walk home was truly awful. By then I realised I wasn't sure I'd be able to cook myself dinner or do much of anything when I got home. I walked into my flat and forced myself to sit at my desk. That night I chopped vegetables while sitting at my desk. Standing was out of the question. I went to bed at 8:00 pm and slept the entire night.

That was over a week ago and the fatigue has not gotten much better. I've only had enough energy most days to simply exist. To make three meals, do laundry, wash dishes, and some days I can even shower. I summoned up enough strength to make it to Cambridge for a few days, something that had been in my calendar for at least a month. For the most part, while I was there, I didn't really spend a lot of time out, and if I did, I was sitting, trying to reserve energy. When I got back, I went right to sleep for three hours.

I haven't been able to do work of any real depth. I've been mentally fuzzy and confused. I haven't been to CrossFit in over a week even though I've wanted to go. The walk to get there is just too much let alone actually trying to do a WOD. Sleep hasn't helped. I sleep a full night and wake up exhausted. I've been eating healthy meals and have cut out a lot of junk food. I didn't start out depressed but my inability to do anything has led me to feeling depressed. After surfing the interwebs for possible answers and coming up with chronic fatigue syndrome, I decided to make an appointment with my GP. I'm hoping she'll be able to find a solution because at the moment, I literally feel a prisoner inside my own exhausted body. 

Climbing Everest

The past few weeks have been challenging. Apart from a depression which has at times approached severe, I have had an attack of near crippling anxiety. It’s the type of anxiety that has no origin, no reason, and no explanation. It is like a knot is around my chest and everything is a source of supreme concern.

The best way I can describe it is as though every single thing I have to do or want to do is suddenly at the top of Mount Everest. Going to CrossFit? That’s nice. The box is now located at the summit. You want to do some reading for your PhD? That journal article is only accessible at an altitude of 29,000 ft. Oh, I see, you want to get out of bed? Best to climb a mountain first.

I wish I could say I was exaggerating. When EVERYTHING feels like it needs so much effort to accomplish, even the simple tasks like getting up, brushing your teeth, taking a shower, cooking a meal feel completely impossible.

One of the things I have managed to drag myself to has been CrossFit but it has required two to three hours of intense self-talk to get me going. Coupled with the thirty minute walk each way and an intense hour long WOD, you’re looking at a five hour process to complete just one task. That’s a huge time and energy investment and at the end of it, I’m not able to tackle anything else.

I have found one source of escape in all of this besides my workouts (which, once I get there, are really brilliant). I have been doing a lot of pleasure reading. Normally, to unwind I’d toss on Netflix, but recently every film and TV show has seemed really unappealing. I’ve found a better escape by reading books which I have been wanting to read for years but never quite got around to them. In the past month I’ve read A Picture of Dorian Gray, The Hitchhiker’s Guide to the Galaxy, Mrs. Frisby and the Rats of NIMH, and An Unquiet Mind. For someone who has also written two papers (one major) and has had to do academic reading this is a huge accomplishment.

Though I seem the type, I’ve never been what you would call a Reader with a capital R. Reading was a bit of a struggle for me because as a child and through high school I was a terribly slow reader. When we had to read three chapters for English on top of chapters in history and other work, I could never manage it. I emerged from the state school system firmly convinced of my own stupidity and hating the act of reading. In the fifteen years since then, whether it was through necessity in the academic arena or finally being permitted to read books that I genuinely found interesting, I guess I developed an ability to read more speedily. I’ve read Lord of the Rings and The Silmarillion twice. I’ve read all of the Chronicles of Narnia and numerous books on Thomas Jefferson. I devoured the Harry Potter series and along the way I’ve read other random books mainly classics like the Art of War, Pride and Prejudice, Dracula, and the like.

While everything else has seemed like a completely impossible task, for the first time in my life reading for pleasure doesn’t. In fact, it has been my only refuge over the past two weeks. When the horrors of the real world have been too much, I’ve lost myself in someone else’s story and for those few hours, the anxiety abates and the depression levels off.

I suppose as far as coping mechanisms go this isn’t a bad one. But this has become an escape and I haven’t been able to do any work over the past week. At some point, I’m going to have to put the books down and return to the real world and face those giant mountains. 

Perhaps my next book should be a climbing manual...

The Lion

March has indeed come in like a lion, though not in the sense of the weather. It’s actually warming up here in Leicester and the sun has been shining the past few days. No, the lion I’m very much afraid, came in the form of some erratic moods.

A week and a half ago, I had a sudden burst of energy. I had been doing a lot of reading for my PhD and all of a sudden, I was making connections and I felt this urge to start writing everything down. My thoughts were flying a mile a minute and I needed to make sense of it all. I sat down and developed a 2500 word outline in one sitting for my first paper. The entire time I felt this energy running through my fingertips. It reminded me of how I felt the first time I drank coffee. It was like I had the power of the universe running through my veins.

I remembered another time about a year ago that I had felt this way. I had been put on antidepressants and I had begun to feel much better. MUCH better. I felt that energy all the time. My thoughts were racing on a constant basis and I found that I was talking to myself much more than normal. No, I wasn’t talking to myself; I was having full blown conversations and even arguments with myself. What’s more is I was arguing with myself in public…about arguing with myself in public. In retrospect, I find it a bit funny. I laugh when I think about it because of the absurdity. It all came to a head one night when I had been pacing around my tiny room, talking to myself. I had the sudden notion that if I were to run around the giant mound in the middle of the college, everything would be fine. Perhaps, in a way it was logical. I had an excess of energy, how do I deal with that? Run it out. The trouble is, I thought I should do this in my skivvies. Thankfully, I decided that it would perhaps be better to call my GP the next morning and get an appointment as soon as possible.

He saw me immediately. I remember bursting into the room and literally spilling out the past two week’s litany of oddities at roughly the speed of light. My GP, an unassuming, pleasant and sympathetic Englishman took it in stride. I’m laughing as I remember his raised eyebrows and look that if I didn’t know better was the result of his thinking, “Oh shit, I think she’s nuts.” He took me off of the medication immediately and my mood stabilised. I began CBT shortly after and I had chalked it all up to a bad reaction to medication. Until this month.

Once I began to feel that course of energy again, it was all too familiar. I didn’t feel I could blame stress and the international move and starting a PhD, at least not anymore. I thankfully never reached the same height as the episode last year, but it was enough to make me book an appointment with my new GP. Then I learned a new word: hypomania.

Apparently, this is the “nicer” kind of mania. It isn’t the kind where you become delusional and begin to think you are Jesus or that you can control the universe with your thoughts. It’s a milder form of mania and it described perfectly what I had been feeling. She had me take a form away to fill out and when I brought it back the next week, I had checked more than double the “normal” amount of boxes. I hadn’t thought it was that bad. I really hadn’t.

Then came the next word: Bipolar.

She explained that she didn’t want to medicate me in case we were missing something else, perhaps a thyroid condition. I underwent a bloodletting and am awaiting the results at this moment. She put in for a referral to a psychiatrist but warned it would be a few months before I heard back. I guess there are still some glitches with the NHS, though were I still in the US, I’d be waiting forever as I have no health insurance back home. I couldn’t shake the impact that word had had on me. Bipolar.

I’ll be honest, I had considered it before. I had spoken to very close friends about what I was feeling but they always seemed to assure me that I was just depressed. The effect of this word was enough to feel like someone had punched me in the solar plexus. I walked home from that appointment and I barely remember seeing anything. I remember looking at the memorial arch in Victoria Park and the flowers in the beds along the walk up to it. Everything else seemed grey.

I began to think about the past month and how I had been feeling. I had felt everything in HD. Every emotion had been more vivid, deeper, and realer. I began wondering if that were really a bad thing. I felt like my protective carapace had been cast off and I had allowed myself to be truly emotionally vulnerable. I had been more open and I had felt everything. The amount of empathy I had felt is almost too much to describe, but at the time I wasn’t overwhelmed by it. It felt really wonderful.

Now, everything was beginning to feel grey. The power of that word had drained the colour from the world. The past few days have been challenging. I haven’t been able to pull myself together enough to work as hard and as much as I want to. I haven’t made it to the box to work out as much either. I can’t peel myself out of bed in the mornings. I still at times feel things in HD, but it seems that it’s only the horror, depression, and hopeless feelings that are vivid. It seems like these elements are standing out of everything I read and watch and do. I suppose the saving grace is that I know that this will cycle out. That it isn’t of my own doing. The trouble is now I feel like I can’t trust the “good” cycle anymore. Is the good too good?

I don’t have a diagnosis yet. There’s still a chance this is a thyroid issue. In a way, I hope it is. It’s easier to explain that to someone than to say I’m bipolar. The one elicits sympathy and understanding. The other, mistrust and fear.  

It's not Lupus (but it is chronic)

I've been doing fairly well the past few months since I last posted. It's for that reason that I really haven't written anything in this space. I didn't feel the need to chronicle the good moments, I was too busy living and enjoying them. Which, to be honest, is as it should be. The only downside to that is when the bad moments come up. When the dark fog rolls in and obscures everything but its own black haze. In those moments, being able to go back and read about the good times, might be a real road map out of that cloud.

This past week was a difficult one. I had finally gotten over the initial excitement (and yes sadness) of completing another big move and starting the next chapter of my life. Those transitional periods can be really exciting especially when you have no idea what to expect and you are learning a whole new city and creating a new lifestyle. I didn't really have time to "be depressed." I was too busy doing things and meeting people. This week though, was the first time since the move that I found myself settled. I wasn't distracted by wondering where the grocery store was or how to get to the library. My brain had quieted down. Then I got slammed out of no where with a severe bout of depression.

This may be odd, but I was so annoyed by it. It came up at an inconvenient time and for really no good reason. I was angry that my brain decided to sabotage my week like that without any sort of warning. Then it finally hit me. I have a chronic condition. It was the first time I understood my depression in those terms. It's not unlike someone with rheumatoid arthritis who has flare ups and has to deal with the expectation of pain on a more or less regular basis. This week I had a flare up. Thinking about it as a chronic illness somehow made it easier to weather. It was the first time that being depressed didn't feel like my fault. That is huge. 

I'm lucky that it didn't last a long as my normal bouts of depression and perhaps this new revelation had something to do with it. It made it easier to think in terms of illness and medication. The illness is depression and for me the medications are CrossFit, friends, and art. I made sure I went to the box, and while I didn't go the four times a week I'm trying to hold myself to, I did go three times and each day I went, I felt better. I got in touch with friends from home and chatted and I made plans to visit friends who are nearer. I also invested more time in my art journaling. I've decided to keep a PhD art journal and that has made a difference in how I'm approaching my project as well as giving me a much needed creative outlet. 

It can be so hard to find your way out of the fog but with practice you start to draw your own road map that you can keep in your back pocket.